Autonom-e for ME/CFS
Empowering People with ME/CFS through Connected, Personalised Digital Care
Increasing access to support for people with limited access to clinical ME/CFS services, autonom-e is a nationally recognised digital health platform which helps clinical teams, researchers, and charities deliver high-quality, patient-centred care for people living with ME/CFS and related post-viral conditions.
Built in partnership with NHS teams, leading universities, and charities, autonom-e supports clinical services with the remote digital assessment, triage, monitoring, and management of people with ME/CFS through a single configurable system which is adaptable to local service needs.
For the public ME/CFS population who do not have access to a clinical service, we recommend viewing our ME Association app which has been co-developed with people with lived experience of ME, clinicians, academics and features a library of support resources curated by the ME Association.
The Challenge
People living with ME/CFS often face long waiting times, limited access to specialist services, and fragmented support. Clinicians need better tools to capture patient-reported outcomes, coordinate multidisciplinary care, and evaluate recovery over time.
Autonom-e bridges this gap by digitising the entire pathway, from initial referral to post-discharge, empowering services to reach more patients in less time, and generate high-quality data for research and service improvement.
We believe that, with our knowledge of NHS service provision and all its flaws and limitations, along with the support of our huge clinical network, academic collaborators, and community of people with lived experience with ME/CFS, we can help people, patients and clinicians alike with a range of solutions accessed at home or clinic as autonom-e continues to grow.
* DecodeME 2025.
** ONS 2023 estimate assuming 50% of UK LC population.
A Complete Digital Solution for ME/CFS Pathways
For Clinical Services
- Remote assessment and triage: capture validated PROMs to understand patient impact.
- Ongoing monitoring: track symptom progression, fatigue severity, and rehabilitation outcomes through regular digital check-ins.
- Patient-initiated follow-up: enable patients to re-engage, reducing unnecessary demand on primary care.
- Configurable support: upload local resources, educational materials, or videos to promote self-management and shared decision-making.
For Researchers
- Digital e-consent and recruitment: set up single- or multi-site studies with automated pseudonymisation and real-time reporting.
- Concurrent data collection: combine routine clinical data with research protocols for longitudinal studies.
- Secure data management: GDPR and DTAC compliant, hosted on AWS cloud infrastructure.
- Proven impact: supporting NIHR-funded studies including HERITAGE (Long Covid and ME/CFS) and national service evaluations for NHS England and NHS Scotland.
- ELAROS is working closely with University of Leeds, University of Oxford, the ME Association and more on various research studies aimed at supporting people with chronic illness and clinical support services.
For Charities and VCSEs
- Engagement and education: offer a branded version of the autonom-e app to provide trusted resources, peer support links, and wellbeing tools.
- Community data insights: collect anonymised feedback to understand unmet needs and demonstrate impact to funders.
- Collaboration opportunities: partner with clinical and academic teams to co-design research / pilot projects.
Join Us
We’re now partnering with NHS providers, Integrated Care Boards, universities, and charities to expand access to ME/CFS digital care and research pathways.
Whether you’re redesigning services, leading a study, or supporting a patient community, autonom-e can be tailored to meet your needs.
Contact us for more information or arrange a demo today!
Autonom-e, giving autonomy to services, patients, and communities in ME/CFS care.